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Article Category: PeopleCare

ScottCare

Published on March 03, 2022

Last updated 01:10 PM March 04, 2024

Photo of Scott Hullihen.

Every day, Scott Hullihen’s gaze falls on a very unique piece of art hanging in his home.

To the untrained eye, the spiraling streaks across the canvas could be mistaken for an abstract painting in a museum. But for Scott, it holds a much deeper, personal meaning: hope for a cancer-free future.

A closer look reveals a puzzling QR code in the corner of the print and, when scanned, it plays the very voicemail from his Wellstar radiation oncologist that got him through the most difficult days in his cancer journey.

“The picture is his voice in soundwaves. I get to see it every day,” said Scott. “It’s the most thoughtful thing I’ve ever seen in my entire life.”

The ebbs and flows of the piece show how he conquered the highs and lows of his difficult rectal cancer diagnosis, with support from Wellstar as the constant through it all.

Just like the highly personalized art print, his expert team of physicians formed a tailored care plan for Scott, right down to his DNA.

Together with his Wellstar team, Scott beat cancer and is back to living life to the fullest.

A surprising diagnosis

Scott was a typical guy in his 30s, working in technology and spending time with friends and family.

“Everything was normal,” he said. “I’d go to sporting events or concerts.”

But his diagnosis of colorectal cancer at just 35 years old was anything but typical.

“That was shocking,” he said.

In 2020, Scott’s stomach started hurting—and it didn’t stop. He started eating better and cut certain ingredients from his diet. He regularly rode his bike for 15 miles.

“I was getting in good shape!” he said.

But the pain continued, with an urgency to use the bathroom, constipation and blood. His doctor referred him to a gastroenterologist for a colonoscopy in August. Immediately after the procedure, he learned there was a tumor in his colon.

“It was a quiet car ride,” Scott remembered sitting silently next to his mother, who had driven him there.

That Friday, a biopsy confirmed it was cancer. Scott was immediately referred to the Wellstar Rectal Cancer Multidisciplinary Program, the first and only treatment center in metro Atlanta accredited by the National Accreditation Program for Rectal Cancer (NAPRC), a quality program by the Commission on Cancer.

Getting the highest level of rectal cancer care

After the weekend, Scott met with Dr. Sahir Shroff, a cancer surgeon.

“People raved about how good a surgeon Dr. Shroff is—I learned he was one of the best in the state,” Scott said. “He saved my life.”

The board-certified and fellowship-trained surgical oncologist reassured Scott.

“This is one of the most subspecialized rectal cancer programs in metro Atlanta,” he said. “Every person with rectal cancer is reviewed at our multidisciplinary meeting to provide the highest level of care.”

Select doctors are designated to stage and treat rectal cancer patients following evidence-based guidelines. The team includes colorectal surgeons, medical oncologists, radiation oncologists, gastroenterologists, pathologists and radiologists. Higher experience in treating rectal cancer leads to better outcomes for patients.

Scott also had a nurse navigator coordinate his cancer staging and treatment. Nancy Page answered questions and scheduled important appointments, such as CT scans and MRIs as well as meetings with various specialists.

A licensed Wellstar genetic counselor was also on Scott’s team. Amy Ekwurtzel found that Scott had two genetic abnormalities that make him slightly more susceptible to colorectal cancer. This information gave the team additional clues about the best way to care for Scott.

Don’t be afraid. Make an appointment. It’s uncomfortable to get a colonoscopy, and hopefully, they don’t find anything bad. But get it checked.

- Scott Hullihen

Wellstar Colorectal Cancer Survivor

Listen to Scott's Story

A compassionate call

That Friday, Scott consulted with Dr. Olusola Obayomi-Davies, a radiation oncologist. He also had an MRI of the rectum and CT scans of his chest, abdomen and pelvis at Wellstar East Cobb Health Park to see if the cancer had spread.

Dr. Davies knew stress and anxiety are common for people waiting for test results.

“It was a holiday weekend, and I wanted to tell him as soon as possible so he could enjoy his weekend,” Dr. Davies said.

Before he could drive his truck out of the parking lot, Scott received a voicemail from Dr. Davies who said the cancer didn’t appear to be in other parts of the body—excellent news. “It was the best voicemail I ever got!” Scott remembered. “It was a relief. I could have filled up a bucket I cried so much.”

Chemotherapy, a challenging game-changer

After the team reviewed Scott’s imaging, pathology and colonoscopy results, they staged his cancer and created a personalized treatment plan. A new evidence-based treatment called Total Neoadjuvant Therapy (TNT) was recommended, calling for chemotherapy followed by radiation combined with chemotherapy before surgery.

“The benefit of having chemotherapy first is that it shrinks the primary cancer in the rectum and addresses microscopic cancer that we can’t see in the body,” explained Dr. Michael Andrews, Scott’s medical oncologist and chief cancer officer at Wellstar.

Scott received chemotherapy through IV infusion treatments every other week plus continuous infusion. Extreme fatigue, nausea and weight loss made him want to quit. Dr. Andrews was sympathetic but encouraged him to keep going with the goal of a cure. He added IV fluid and steroids to Scott’s infusion treatments to ease the nausea.

Scott felt better and completed his chemotherapy course on December 16, 2020.

“I rang the bell—everyone clapped,” he remembered.

Best of all, a CT scan showed the tumor had shrunk by 80%.

“I couldn’t believe the difference!” he said. “I could go to the bathroom. There was no more pain.”

Did radiation make the tumor disappear?

Scott began external beam radiation therapy, paired with a low-dose chemotherapy pill to optimize the effectiveness of radiation. Dr. Davies used volumetric modulated arc therapy (VMAT) to precisely contour radiation targets into unusual shapes while minimizing toxicity.

“Dr. Davies kept it real,” Scott said. “He was cool in the way that he talked to me—not like a doctor, like a friend.”

This time, the CT scan showed that the tumor had disappeared. However, Scott still needed surgery.

“When we finish someone’s treatment, it looks like all the cancer is gone,” Dr. Davies explained. “But there can still be microscopic cancer that doesn’t show up on the scan. Surgery is important.”

Robotic surgery for a long, cancer-free life

In April, it was time for Scott to have complex rectal cancer surgery at Wellstar Kennestone Regional Medical Center. Dr. Shroff guided a da Vinci Surgical System robot to make five small incisions and peer into Scott’s abdomen with magnified cameras. The minimally invasive technology allowed Dr. Shroff to remove part of Scott’s rectum with precision. Two months later, Scott returned to the hospital so Dr. Shroff could reconnect his healed colon.

After surgery, Scott’s pathology found no evidence of cancer anywhere in the colon, rectum or lymph nodes.

“That’s about the best news you can ever give,” said Dr. Davies.

Scott said he couldn’t have gotten this far without his healthcare team—and the overwhelming support of his family.

“After my surgery, I was in the hospital for eight days and my mother was there everyday,” Scott said. “She is a saint and I couldn’t have done it without her. My dad, sister and my brother-in-law would visit often. Without their continued positive support during the entire process, it would have been so much more difficult.”

Advocating for good health

Scott sometimes advises and comforts acquaintances who are newly diagnosed.

“I say trust the process. The doctors and nurses at Wellstar are absolutely amazing—I can’t say enough good things about them,” he said.

He also jokes that he’s “lucky” to have annual colonoscopies. He encourages friends with symptoms to talk to their doctors about symptoms without delay.

“Don’t be afraid,” Scott said. “Make an appointment. It’s uncomfortable to get a colonoscopy, and hopefully, they don’t find anything bad. But get it checked!”

Scott and his girlfriend standing in front of the canvas art piece featuring the call from Dr. Davies.

The gift of a second chance

Today, Scott works in the telecommunications field, is active and spends time with friends and his girlfriend.

On his first chemotherapy completion anniversary, Scott’s girlfriend surprised him with a blue-ribbon cake (the colorectal cancer awareness color) and his unique, personalized piece of artwork.

He unwrapped three canvas art pieces displaying a zig zag and a QR code, which he scanned with his phone. His favorite voicemail—the one from Dr. Davies telling him his cancer was contained—played back.

As for what’s next? Scott’s healthcare team at Wellstar will continue to monitor his health so he can live his longest, fullest life.

“For some reason, I got a second chance, and I’m going to make the best of it,” he promised.

Learn more about the Wellstar Multidisipinary Program for Rectal Cancer—the first and only center in metro Atlanta to have the NAPRC accreditation.

Tags

Sahir Girish Shroff Sachin Goel Olusola Obayomi-Davies
East Cobb Health Park Kennestone Regional Medical Center PeopleCare Cancer Care Digestive Care
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Photo of inflatable colon

Highlights

Walk Through a 7-Foot Colon Model and Learn About Screenings at Wellstar Events

Early detection is the best prevention, especially when it comes to colon cancer. If caught early, colorectal cancer has a 91% survival rate.

For someone at average risk, screenings should begin at age 45. Those with a higher risk or a family history of colorectal cancer may need to start screening sooner. Talk to your care team to create a personalized screening plan.

To raise awareness of the importance of colon cancer screenings, Wellstar’s surgery, gastroenterology, cancer care and community health teams will host informational events throughout March. Visitors can walk through a large inflatable colon model, learn about the importance of screening and early detection, and at some events, nurses will be available to help patients schedule a colonoscopy.

  • March 6, 8 AM - 4 PM, Wellstar MCG Health Medical Center B Entrance 
  • March 6, 11 AM - 1 PM, Wellstar Kennestone Cancer Center
  • March 11, 10 AM - 2 PM, Wellstar Sylvan Grove Medical Center
  • March 12, 8 AM - 4 PM, Wellstar Spalding Medical Center
  • March 16, 8 AM - 4 PM, Wellstar Douglas Medical Center Main Lobby
  • March 17, 8 AM - 4 PM, Wellstar Paulding Medical Center Main Lobby (upstairs)
  • March 18, 10 AM - 2 PM, Wellstar Windy Hill Main Lobby
  • March 20, 8 AM - 4 PM, Wellstar West Georgia Medical Center Main Lobby
  • March 23, 8 AM - 4 PM, Wellstar East Cobb Health Park
  • March 24, 8 AM - 4 PM, Wellstar Avalon Health Park Lower Level Lobby
  • March 25, 8 AM - 4 PM, Wellstar Vinings Health Park
  • March 26, 8 AM - 4 PM, Wellstar Acworth Health Park
  • March 27, 8 AM - 4 PM, Wellstar Cherokee Health Park
  • March 31, 8 AM - 4 PM, Wellstar Cobb Medical Center

Call our colorectal cancer screening hotline at (470) 793-4032.

Photo of inflatable colon

Keep reading
Group of people eating

Highlights

Make Colon Health Your Habit

For many people, talking about colon health can be a little uncomfortable. However, medical issues don’t just go away if you ignore them.

Being proactive about your well-being with preventative care can help catch colorectal cancer or another serious condition early, often before it becomes a bigger problem.

Wellstar is committed to keeping your colon healthy with preventative screenings and expert care, so you can continue to live well.

Catch colon cancer early

Early detection is the best prevention, especially when it comes to colon cancer. If caught early, colorectal cancer has a survival rate of 91%.

“Colon cancer is the second most common cause of cancer death in the United States, so it’s very important that everyone gets screened,” said Wellstar Gastroenterologist Dr. Cameron Body. “For an average risk person, screenings should begin at age 45.”

Those with a higher risk or a family history of colorectal cancer may need to start screening sooner. Partner with your provider to create a personalized screening plan—and stick with it to stay ahead of the disease.

“Recently, colon cancer has been a major trending topic in public discourse, and it has been impacting younger individuals each year. It is important to start colon cancer screening at the age of 45 or sooner if you have a family history of colon cancer,” said Wellstar Gastroenterologist Dr. Shani Clay. “This is a preventable disease, so please speak with your primary care clinician or gastroenterologist to help get you screened. Colonoscopies can help prevent colon cancer, diagnose and help direct early treatment if you are diagnosed.”

The death rate for colon cancer in older adults has been decreasing for the past several decades due to screenings, according to the American Cancer Society. Screenings can identify polyps before they become cancerous and can catch cancer earlier when it is more easily treatable. However, in people under 55, death rates from colon cancer have been increasing by about 1% per year since the mid-2000s.

Why colonoscopies work

During a colonoscopy, a Wellstar gastroenterologist will view the inside of your colon and look for polyps or any other abnormal tissue that could be cancerous. This preventative testing is key to catching colorectal issues at the start.

“A colonoscopy is the gold standard when screening for colon cancer. The procedure itself is not painful, and we make sure you’re comfortable throughout the process,” Dr. Body said. “The goal is to do a high-quality exam with a good prep to find polyps when they’re small and get them removed to minimize the risk of them subsequently developing into cancer.”

Polyps take about five to 15 years to evolve into an invasive cancer, according to Dr. Carmen Klass, oncologist and hematologist with Northwest Georgia Oncology Centers, a care partner of Wellstar.

“If you have a colonoscopy every five to 10 years, they can remove the polyp and it will never be declared an invasive cancer,” Dr. Klass said. “In fact, if all Americans did their screening colonoscopies every five to 10 years, the death rate for colorectal cancer would drop by 50%.”

See how colorectal cancer screening saves lives.

Signs of colorectal cancer

  • Colon cancer is typically discovered when a patient has a colonoscopy, but it’s important to watch for these warning signs:
  • A change in your bowel habits, such as persistent diarrhea or constipation
  • Bloody stools or rectal bleeding
  • Abdominal discomfort, such as cramps, gas and pain
  • Feeling like you are unable to empty your bowels completely
  • Weakness or fatigue
  • Unexplained weight loss

If you experience any of these symptoms, contact your care team right away.

Colorectal cancer care at Wellstar

If you have been diagnosed with colorectal cancer, count on Wellstar for comprehensive, personalized care. Our specialists will work together with you to form a tailored treatment plan and offer support every step of the way.

“When a patient is diagnosed with cancer, we walk with them and guide them on this difficult journey,” Dr. Klass said, sharing how Wellstar provides compassionate care.

Wellstar offers medical expertise close to home, clinical trials and state-of-the-art surgical procedures to treat colorectal cancer. We also have a multidisciplinary gastrointestinal (GI) tumor board that diagnoses and creates treatment plans collaboratively.

Along with cancer surgeons, medical oncologists and other experts, our care team also includes nurse navigators, dietitians, social workers, psychologists, psychiatrists and counselors to provide complete care and support.

Learn how Wellstar cares for colorectal cancer.

Get answers with genetic testing

Whether you have been diagnosed with colorectal cancer or are concerned about the chance of developing it, genetic testing can help you understand your risk of getting the disease.

If your parent, sibling or child has had colorectal cancer, you are two to three times more likely to develop the condition compared with someone with no family history. Our genetic counselors can help determine how genetic testing could benefit you and your family.

“Wellstar offers support from genetic counselors to help keep other family members safe in the future,” Dr. Klass said.

Find out if genetic testing is right for you.

Keep reading
Thanks to a team of heart failure doctors and the Optimizer Heart Mini, Pat's back to dancing the Carolina shag again.

PeopleCare

PatCare

Pat Gelisse has been dancing for 30 years. She even taught the Carolina shag for a while. It’s a partner dance, sometimes compared to Swing dancing to beach music.

But severe heart failure downgraded Pat’s dancing queen status for close to 10 years.

“I went from feeling happy to feeling like a nothing,” she remembered of that time in her life.

With a team of Wellstar heart specialists working together for her, Pat found hope and new life on the dance floor.

Heart failure masquerades as acid reflux

It started more than a decade ago when Pat lived in central Georgia. She scheduled a doctor’s appointment for what she thought was acid reflux. She popped in on a quick break from her marketing job, assuming it wouldn’t take long.

Blood work and an EKG got Pat a ticket straight to the hospital and a quadruple bypass. 

“My heart got worse; it wasn’t pumping blood,” Pat said.

She was in acute heart failure, a life-threatening condition where the heart doesn’t pump well enough to deliver the necessary amount of oxygen to her body. Pat’s ejection fraction (EF)—the percentage measurement of the blood that leaves the heart each time it pumps—was only 10%. The normal range is 50 to 70%.

It was a scary time, and with a family history of heart problems, Pat was worried. She’d lost both parents to heart failure, as well as other family members.

“I just knew for sure I was going to be next,” said Pat.

Doctors from various academic institutions discussed serious treatments ranging from LVAD to transplant, but because the pumping performance of her heart improved, she was no longer a candidate for those procedures. Instead, Pat spent close to nine years managing her heart failure with a pacemaker and various medications—treatments that failed to get her back on the dance floor.

Keep reading
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